Neuropathic Pain

I find it very interesting to see the pain managed so successfully with non-narcotic drugs. I’ve been in pain for years supposedly from my arthritis although my case is quite complicated. But isn’t everyone’s case different and complicated in other ways?

NSAIDs (non-steroidal anti-inflammatories) helped the pain but this was far from complete. And these types of drugs are not meant to be taken forever. The ideal case is that you get an acute inflammation from something eg spraining your ankle and you go on the NSAIDs for 10 days to aid with the healing.  Arthritis, however, is not an acute situation but rather is chronic. People go on the NSAIDs because of the pain and the drugs help to different degrees.Unless the patient is persistent about their level of pain, it often stops here. And the patients’ don’t know what is “normal” pain from arthritis. The one thing that they do know is they can’t manage many “normal” daily tasks and this can impact their quality of life (QOL) to varying degrees.

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God Grant Me the Serenity to Accept the Things I Cannot Change

Life is a constantly changing canvas. We either adapt to the chances or we stay where we are. I’ve seen people that are bitter and angry. They can’t get past it and they put themselves into that scenario every single day. Not realizing that some changes have to come from within…

I had a support group back when the hospitals were notifying people that they had hepatitis C from the blood transfusion they had during surgery…I understand the anger- it was a part of me, too. But if you don’t let it go, you live and steep in that anger. It eats you up. No joy. So many other things to be thankful for. Children. Grandchildren. Life. Even in that moment of giving support, I met people that became lifelong friends. Special people I never would have met. I’m not saying that the anger has no place – it’s just not the place you want to stay.

For ten years, I suffered from hepatitis C. I choose the word suffered carefully. Everyday was a trial. Getting out bed was hard in the morning and sometimes wondered why I was getting up. I kept fighting. I was in clinical trials and spent three years taking drugs that may well have caused some of the problems I’m dealing with today. Nothing worked. Then I went to Holland and was accepted into a clincal study. It was a 7 hour surgery where a machine was used to heat your blood to exactly 41.8C. It caused the proteins in the immune system to unfold (from the heat) and then on the cooling refold back into their natural shape. The hypothesis was that the immune system was defunct. It no longer recognized the hepatitis C as an infection. After the surgery, it sure recognized it. And then I underwent high doses of chemotherapeutic drugs for 52 weeks. I needed blood transfusions (ironic, huh) and had to take shots to build my neutrophils- part of your white blood cells. I still have to take those shots. It was the worst year of my life. But I persisted where my family had doubts. I knew this might be my last chance to rid myself of this terrible disease.

Well it worked. That was in 2004. The hepatitis C is till undetectable. The odds on it returning now are very small. Every day is a good day compared to when I had the hepatitis C. But no one knows what caused my spinal degeneration. Advanced disc disease. Spinal Stenosis. Foraminal stenosis. Secondary scoliosis. Was the drugs? Was it the hyperthermia? Those are questions that can’t be answered…But I had MRIs from 2001 that showed normal degenerative changes for age. Now they read like a book. I have the spine of an 80 year old and the mind of 23 year old. :-) I wouldn’t change anything. That’s how bad the hepatitis C was.

Now I sit before you having had three back surgeries. Being told that I move like a young person and my mind and body are not in sync. I’m used to fighting. Where does acceptance come into play? Do I accept this for my reality or do I continue to think that all will be normal one day? Am I keeping myself in this place the same way that the people did with hepatitis C? I don’t know the answer.

Maybe it’s a half way in between. I was born to fight. I was a blue baby back in 1954. Do learn to stop and accept the changes? I don’ t know….I just don’t know. God grant me the serenity to accept the things that I cannot change, the courage to change the things that I can and the wisdom to know the difference.

Yoga Journal – Yoga Holistic Healing – Back to Back

Yoga Journal – Yoga Holistic Healing – Back to Back

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This is a lengthy article written by Elise Browning Miller on Scoliosis. It’s very well done.

As usual, consult your surgeon before attempting any of the exercises. Overstretching your spine following surgery can do damage.

Yoga for Scoliosis

YOGA FOR SCOLIOSIS Click here to go directly to the website.

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I’m going to review this DVD. First I’d like to introduce you to Elise Browning Miller (posted from her website) Living with Scoliosis. Read past for the review.

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Updated Links on the Spine

I’ve added more links for everyone to check out. I’ve included some modified Pilates and Yoga, info on Scoliosis and Osteoporosis and just in general education sites on the spine.

Feel free to send me any links that you have and want to share.

Thanks

Dar

Feeling Good as I Enter Week 10: Controlled Movements

Good visit with physio last week. Cleared up the what the neurosurgeon said and what he meant. It amazes me that all parties involved speak English as our first language and yet the number of interpretations is astounding.

For physio, check with your Spine Clinic. At the Rapid Access Spine Clinic in North Vancouver they have a physio center integrated into the total care system. But you have to ask. HAVE TO ASK???? Yes, not all surgeons believe in physiotherapy. OK, that’s a bit unusual. One might even go as far as to say crazy but that is the reality of the situation. Trust me.

Basically the rule on not to bend, rotate or sideways bend were things the Neurosurgeon would tell any person he talked to including the physio as an individual. Great. Protect your spine. But let’s face it, I’ve said it time and again you have to have these movements in your repertoire or you’re in deep dodo.

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Surgery is Done

Hi all

Just a short post. THE l2/l3 decompressive laminectomy and L5/S1 microdiscectomy is finally over. I spent one night in the hospital. I’ll write more about the stay in the hospital later but it was not pleasant.

The Decompressive surgery went well, no unexpected complications or findings. Also no doubt about the amount of compression causing probems.

In the area of L5/S1 the S1 nerve looked okay compression wise but L5 was a bit of mess. LOTS of scar tissue. In fact, because he had to scrap off so much scar tissue – the incision ended up being the length of L2/3 all the way to L5. It looks like that was part of the reason that I was so bent over – the scar tissue was pulling me down towards the hip on the one side.

Anyway, it hurts like heck. I have staples in this time because of the amount of work. Lucky my sister is a nurse and can take them out or I’d have to go sit in my GP’s office to have the job done.

Managing the pain well at home. Sleeping well and resting. 8 weeks of inactivety except for walking….then occupational and phsyio therapists.

More later. :-)

Specialists, Specialists and More Specialists

Video of the Results

Results of the CT Scan, the visit to the hematologist and results from the Internal Medicine specialist.

Granulation Tissue and a Contrast MRI

Modified Reformer Workout with Cardio